If we had done it later, it would have been harder and more of a slog, I think we would have been too old. It was important to us that siblings don’t have to be responsible… Now everyone is settled we visit twice a week and get to do the nice things now, spending quality time together.

For me personally it was exhausting at times pulling everything together, also due to both of us having the caring roles with 2 children, it seemed never enough hours in the day, another emotion was of sheer excitement and disbelief and respect that we were so lucky to have the help from JMS. It has been life-changing, for now it has given them a forever home to move into and for carers to be put in place to give us much needed respite, which will carry on in the future. Our dream has been achieved for the present, in creating a forever home for George & Chloe, our hope is that this will carry on when both we have passed away. Then our long future dream is that it will help so many families to live a life that we have had. And that’s the most rewarding part.

On the emotional side we found it hard not having her at home, not being in charge of her welfare and safety, not checking that she looked respectable, letting go to a certain extent and putting your trust in others. Ultimately I'd tell others to do it, it's hard work but so worth it.

We used to battle everyone for everything, we hardly even talk to each other now as everything just works.

You have to be resilient if you are going to do this, its constantly hurdle after hurdle and it will drive you crazy. But you get that resilience in knowing that your child is going to have the life they want, and wont be just stuck in residential care that someone else had chosen for them

Setting this up feels like the only thing going on in my life for the 3 years… there have been really high levels of anxiety that I didn’t know I had, I found it really hard to let go of the little things. At the same time I’m delighted in how she’s navigated herself and how everything has lined up – its felt like nothing but a miracle.

Our dream has been achieved for the present, in creating a forever home for our children, our hopes is that this will carry on when both we have passed away… As upsetting it is to think of, we really didn’t know what the future would hold, but could only think that both our children would be placed in separate residential homes… our Long future dream is that this house will help so many families to live a life that we have had. And that’s the most rewarding part.